2021
La terre, le ciel. L’ombre, la lumière. La vie, la mort. Et entre les deux, qu’est-ce qu’on fait ? On saute de case en case sur la marelle : parfois on va tout doucement, parfois on saute très loin. L’annonce d’un diagnostic de maladie grave pour un enfant est très douloureuse. Accepter la réalité des soins palliatifs peut sembler impossible, mais il existe des équipes ressources qui sont un véritable soutien, aussi bien physique que psychologique. La Marelle, composée de médecins, d’infirmières et de psychologues est basée à l’hôpital d’enfants du CHRU de Nancy. À la maison ou à l’hôpital, elle veille au confort et au bien-être de l’enfant, de sa famille, des amis et des soignants qui l’entourent. Alors que le cours de la vie semble s’arrêter, que le temps se fige, il est pourtant possible d’imaginer des projets de vie : simplement retourner à l’école ou bien faire un grand voyage. Quelque soit la situation sociale, la culture, l’histoire de vie, personne n’est jamais prêt à vivre la mort d’un enfant, mais on n’est jamais seul.
Hopscotch
Earth, sky. Shadow, light. Life, death. And in between, what do we do? We jump from square to square on hopscotch: sometimes we go very slowly, sometimes we jump very far. The announcement of a serious illness diagnosis for a child is very painful. Accepting the reality of palliative care may seem impossible, but there are resource teams that are a real support, both physical and psychological. La Marelle, made up of doctors, nurses and psychologists, is based in the children’s university hospital in Nancy. At home or in the hospital, this team ensures the comfort and well-being of the child, his family, friends and nursing staff around him/her. While the course of life seems to stop, as time freezes, it is nevertheless possible to imagine life projects: return to school or make a great trip. Whatever the social situation, the culture, the life history, no one is ever ready to lose a child, but we are never alone.
Earth, sky. Shadow, light. Life, death. And in between, what do we do? We jump from square to square on hopscotch: sometimes we go very slowly, sometimes we jump very far. The announcement of a serious illness diagnosis for a child is very painful. Accepting the reality of palliative care may seem impossible, but there are resource teams that are a real support, both physical and psychological. La Marelle, made up of doctors, nurses and psychologists, is based in the children’s university hospital in Nancy. At home or in the hospital, this team ensures the comfort and well-being of the child, his family, friends and nursing staff around him/her. While the course of life seems to stop, as time freezes, it is nevertheless possible to imagine life projects: return to school or make a great trip. Whatever the social situation, the culture, the life history, no one is ever ready to lose a child, but we are never alone.
